Title:
Team Grant: Pediatric Rare Disease Clinical Network
Agreement Value:
$19,999,843.00
Agreement Date:
Apr 1, 2023 - Mar 31, 2028
Description:
The specific objectives of this funding opportunity are to:
• Develop a platform to support pediatric rare disease clinical trials in Canada in an accessible manner, for both the profit and not-for-profit sectors, to maximize the impact and benefit of the research for clinical practice, policy, and future research;
• Increase the capacity to perform rare disease clinical trials in Canada by offering training and mentorship opportunities for researchers, patients, clinicians and other relevant stakeholders;
• Attract international clinical trials, increasing investments in Canada and providing earlier access to innovative therapies to people living in Canada;
• Foster diversity and inclusion in and improve access to clinical trials;
• Implement processes to acquire data from clinical trials, real world registries, health economics evaluation, and post-marketing surveillance to inform assessment reviews throughout the whole drug/therapy cycle; and,
• Increase the number of new rare disease drug submissions for authorization of commercialization to Health Canada.
Organization:
Canadian Institutes of Health Research
Expected Results:
This program provides funding for targeted grants and awards aimed at addressing priority areas. Priorities are identified by CIHR in consultation with other government departments and agencies, partners and stakeholders. The program mobilizes researchers, patients, health providers, and decision makers to conduct research, enable knowledge translation and build capacity in the priority areas. It often requires collaboration within and across sectors.
Location:
Vancouver, British Columbia, CA V5Z 4H4
Reference Number:
236-2023-2024-Q4-00647
Report Type:
Grants and Contributions
Recipient Type:
Individual or sole proprietorship
Recipient's Legal Name:
Lacaze-Masmonteil, Thierry
Research Organization:
Maternal Infant Child and Youth Research Network (Vancouver, BC)
Program:
Research in Priority Areas
Program Purpose:
This program provides funding for targeted grants and awards aimed at addressing priority areas. Priorities are identified by CIHR in consultation with other government departments and agencies, partners and stakeholders. The program mobilizes researchers, patients, health providers, and decision makers to conduct research, enable knowledge translation and build capacity in the priority areas. It often requires collaboration within and across sectors.