Title:
Team Grant: Improving Health and Admin Data and Monitor Rare Diseases
Agreement Value:
$1,598,238.00
Agreement Date:
Apr 1, 2024 - Mar 31, 2028
Description:
The specific objectives of this funding opportunity are to:
• Demonstrate the feasibility of tracking rare diseases and conducting prospective studies in this field within the Canadian health care systems;
• Increase cross-jurisdictional collaboration and data sharing amongst hospitals;
• Prospectively assess the impact of mortality, co-morbidities, hospital usage, other health system usage, and total direct cost of rare diseases to the health care system; and,
• Facilitate the establishment of patient registries for potential enrollment by a diversity of people in Canada in clinical trials and to enable patient and caregiver peer-to-peer contact.
Organization:
Canadian Institutes of Health Research
Expected Results:
This program provides funding for targeted grants and awards aimed at addressing priority areas. Priorities are identified by CIHR in consultation with other government departments and agencies, partners and stakeholders. The program mobilizes researchers, patients, health providers, and decision makers to conduct research, enable knowledge translation and build capacity in the priority areas. It often requires collaboration within and across sectors.
Location:
Calgary, Alberta, CA T2N 1N4
Reference Number:
236-2024-2025-Q1-00261
Report Type:
Grants and Contributions
Recipient Type:
Individual or sole proprietorship
Recipient's Legal Name:
Marshall, Deborah A
Research Organization:
University of Calgary
Program:
Research in Priority Areas
Program Purpose:
This program provides funding for targeted grants and awards aimed at addressing priority areas. Priorities are identified by CIHR in consultation with other government departments and agencies, partners and stakeholders. The program mobilizes researchers, patients, health providers, and decision makers to conduct research, enable knowledge translation and build capacity in the priority areas. It often requires collaboration within and across sectors.